Parents and Carers of Children with Disabilities and Life Limiting Disorders
Receiving your child's diagnosis may have taken you completely by surprise or maybe your worst fears were confirmed. Either way, in one incomprehensible, nightmarish moment, your life, expectations and hopes for the future will all have been turned on their heads.
Reality offers a different vision and one, especially in the early days, that is frightening, confusing and not at all what you had planned for or wanted.
Grief is an entirely normal response.
Your child may need a lot of your time.If you have other children you may have concerns about how they will cope or are coping with a disabled or sick brother or sister.
Sometimes it's difficult to share what you're going through with friends and family. Being able to talk to someone about how you're feeling can help to relieve the distressing thoughts and anxiety, and give you back a sense of control.
Taking the time to tend to your emotional responses can make it easier to gain perspective, allowing you to plan and make the appropriate choices for you and your family.